Where I’ve been

October 14, 2017

The past two weekends we’ve been visiting with family. I’ve gotten to meet my newest nephew. He’s exactly one month old today, and he and his big brother are both real cuties.

I posted on Facebook over a week ago that I had a big decision to make about the communication device. Thankfully I do have some time, and some help, to figure this out. The thing is, I’m using a loaner communication device. Mine is in the shop. Do we ask my insurance to repair mine if we are going to need to ask for a new device in next year or so? That seems like a waste for everyone.

I’ve kind of tried the new device for a week or so.. I say kind of because I was only able to use the eye gaze system. My pointer, the thing I’ve communicated with since I was a tiny girl, doesn’t want to work on the new communication device. So I didn’t get any real time to figure out the new system.

The thing is, obviously we don’t know how much longer my communication device is going to work. I’m just not sure what to do about all this. I’m talking with my speech-language pathologist and the people at the company to try to figure something out

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Trying a new device

September 16, 2017

It’s kind of been an exciting week. My newest nephew came on Thursday evening. Labor was quick and that was definitely an answer to prayer.

And then yesterday I was introduced to what could be my newest communication device.. Well, I guess it’s more a question of when not if.. [Unless the Lord heals me, which I’m totally opened to.]

I’ve always gone with Prentke Romich devices, and they’ve never let me down. Not only do the devices seem like the best products out there, their support people are awesome. And I mean everyone from sales to service.

When my device broke this past summer, the speech-language pathologist I’ve been with for several years suggested that we go on and start looking at another device.

I’ve known there was a way to use the communication device with only your eyes.. I wear a hat that has a stick on top of it. I can not remember a time when that was not how I’ve communicated. But we’re giving this Eye Gaze thing a try.. It’s an adjustment for sure. Trying to learn that and a new device is going to be a good bit of work. I’ve only had the device two days so far. I am going to be practicing some each day.. We will see

September 9, 2017

My weekends have been a little crazy lately. And honestly, I’m on the computer later than I’d like to be on a Saturday. But I am getting a lot done, and I know that I am going to be away from everything tomorrow, which sounds great because I’m ready for time with friends.

I’ve been around family for several weekends in a row, different combinations of family. I’ve enjoyed that quite thoroughly.

I’m not sure what to say. Have been in prayer for this nation a lot. I know we’re in a mess with these hcanes. I’m praying about that too. But hurricanes happen, natural disasters are part of life.. I’m more concerned about these riots. Should we keep our monuments? Do we respect life? Do we respect authority? Leaders mess up, they’re human. We are all human.. Sighs, I have a lot more questions than answers about all this stuff. And I do not understand everything going on, I know that.

I may have bitten off more than I can think through tonight. But I am thinking and praying through these things.

Trying to do this

August 12, 2017

As usual, by this time of the week I’m ready to put down any kind of work and just relax for a while.. I know I am going to be pretty busy the next two weekends, and I don’t know if I am going to get around to this or not. We’ll see how things go. Today I think I’ll share some about my personality, I guess.

  • I like order. I like getting things done and knowing that they’re done for the day. And I feel better if all my work is done before I start reading or doing fun stuff.
  • I like enjoying my dessert last. Kind of feel disappointed if I don’t have dessert waiting for me after dinner.
  • I’m disabled and can’t feed myself, so I never eat alone. But I don’t like eating in quiet. I like listening to other people. Don’t like it when aides come in and they have nothing to say.
  • I like quiet when I’m working. Sometimes I turn music on. Other times I don’t.
  • I’m reminding myself that these last few Sundays are not normal. The friends I usually do things with are gone.. Also reminding myself that something besides the church meeting has turned up for me to do. Hopefully something will happen tomorrow.

I got stitches [long time ago]

August 5, 2017

I’ve been working pretty much this week, and as usual, I’m not sure what to do on this. But I looked up blog prompts, and decided that might be interesting enough to tell.

We lived in the mountains of North Carolina from the time I was four until I was about nine. I think this incident happened when we were back there visiting shortly after we had moved. My sister and I were visiting with one of her good friends.? I don’t remember why, and I don’t know if my sister had just started pulling me up the steps in the wheelchair. But somehow I fell and busted my chin. I remember going to the doctor’s office, not the hospital, to get my stitches.. Think my sister had to take me to get ndy’s for making me get hurt.. Don’t think she was really at fault of course..

 

Camp memories

July 29, 2017

I’m about ready to give up on everything having to do with the computer for today..? I’ve had some computer troubles and things like that. But here is story about camp. This is mostly taken from my journal. Camp begins Monday after lunch.. I stay in the conference center which is more like a hotel than a camp, which is fine by me. The first thing I did was meet my helper. Her name was Judy. Really sweet woman.. Judy was the person who would take me wherever I wanted to to go. We were together from breakfast until I decided to get to bed. I had met her when I went last year, but we hadn’t spent a lot of time together so we took some time to talk and get to know each other. She’s a teacher, is married to a physical therapist. They have two girls. We went swimming. Katie helped us. Katie was someone that helped me with lifting, bathing, feeding.. I think we sat around and talked some more after changing. I told her and Marsha, who’s the friend that got me to camp in the first place, about my trip overseas. We had dinner together. And then it was time for our first meeting.. The theme this year was Africa.. We had ice cream after that and went to bed.. Tuesday we got up and dressed. I had some quiet time. then we went to breakfast. After breakfast, we had a large group meeting and then met in small groups. I was disappointed not to get anymore time with my small group that week.. We had lunch. And then I rested some in the nursery. We went out on a boat Tuesday afternoon. Katie took Judy and I and a couple of other girl in the car. After the boat ride, we ended up back in the nursery with Lori, Marsha’s neighbor. I think they’re pretty close and have done a lot of life together. Dinner was Mexican food. Marsha put like a salad over rice. I don’t remember sitting with anyone except the three usuals, Katie, Marsha and Judy.. I think we needed to get food down pretty quickly. Marsha was not comfortable with either of the desserts so we just skipped. It was camp shirt day and we had to take pictures. Started telling Judy about David. The camp dance was next. This was not a boy/girl thing by any means. Marsha was working with Angalee, funny how much she reminds me of Aunt Debbie.. And Mom, Judy’s daughter is Angie. Except for having shorter and less hair, she looked and felt a lot like Brooke. It was amazing how similar they feel. Angie had Katie Erwin this year.She’s autistic. Katie loves to tell jokes.. I danced some, going around in circles. But Judy and I talked a lot about the family and everything. Told her a lot of stories. Marsha gave me some smoothie.A lot of people were going swimming but I thought it would be too busy and crowded. Marsha and Katie gave me a bath and I  got on to bed.. Wednesday was the day I got quiet time done. And that was nice because I had no time the rest of the day. Had biscuit and gravy and frosted flakes. Sat with Gwendy. She’s  one of the people I feel could do more, could work from home surely. But she just watches tv and plays bingo. It’s kind of sad to me.  Wednesday was the  day the Africa people shared. It was slides and stories, no teaching to my disappointment. There was no group time either. The day started the mayhem after that. Marsha felt like she needed to stay with Angalee. And besides, Nathan was sick and they wanted him to keep to himself. So Marsha didn’t go on the trip. I ended up sitting in the car about an hour while they got us all ready. Judy was with me most the time, telling me about her two girls.. Katie drove and we had Cecelia with her helper.We had sack lunches. Marsha had asked for some different things to be put in mine. Not sure if we were given the wrong lunch or whatever.  Katie and the girls were with a different  boat. Katie felt like Cecile and I understand that. Judy and I rode with several downs guys and their helper. It took us a good while to get et me figured out. Wearing a pdf and a helmet can get complicated. By the time we had figured everything out it was time to swim. And Judy and I didn’t want to ask. We did get into some interesting discussions.. The guy that did my massage last year got me back to Katie and the girls. Got back to camp. Got changed. If I could have taken a bath by myself I would have.. Dinner was chicken, rice, vegetables and potatoe. Dessert was raspberry cheesecake. Judy and I sat around talking some more. And then I talked to the African pasor some. And then Chatequa and I talked a while.Katie, Marsha and I talked some about disability and the lack of motivation. Got to bed pretty late. Got up and had a little quiet time. Breakfast was french toast and yogurt granola with banana. We had a little worship time together. And then had a ladies tea. Didn’t eat anything there. Really enjoyed the devotion that was  read. And then we had a time of sharing. So many of the women have been blessed through camp and each other. And then it was time for the ladies lunch. Had pita with humus, and then n tomato soup.. I don’t understand why they do this, but the woman that shares seems to have this awful story. This woman’s husband was killed right around Christmas. And then her  son was kidnapped right around Valentine’s Day.I didn’t like it. Didn’t think it was encouraging at all. Had some more chicken which Katie put into the soup and then some cake.. I had my massage. Honestly that at was pretty disappointing? Feel like they were barely touching me. Katie, Judy and I did go swimming and that was nice. Then Judy and I tried to do the art. Thought that would be sometime I could write but dinner was earlier than we thought and we had to go back down without doing anything.. Dinner was salad, spaghetti, green beans and chocolate cake. Didn’t have this. It had  had to charge. Sat with a friend of Katie’s. And then it was time for the show. The Emmarts did make it. Found somewhere to charge and Kesha and I chatted through the show. The Emmarts were the family I became fast friends with last camp.  Bella, who’s four. kept hugging me. It was sweet. They made themselves leave after the show. It was hard because they wanted to visit with everyone but the girls were worn out, and of course he had a to work in the morning.. Went to the fires. Gracie Erwin had done a beautiful job singing and I got to tell her that. Judy and I talked to another helper for a while . Marsha a got me a bath herself that night.. Had some quiet the next morning.Had banana, biscuit and gravy and yogurt  granola bar. Sat with Gwendy and her family some. Think the sister and I are going to keep  up. Got a little time with Donna some. Hung out with different people… Closing meeting was a lot of pictures and stories about camp.

Another Saturday

June 24, 2017

Life is going pretty well. Work is going pretty well. And I guess I could say the same for writing. As usual as I write this, I write this on Saturday, I’m tired and ready to be finished with everything.

Have you ever had a thought that would not leave you alone? For several weeks I’ve wondered what it would be like to be in heaven when Billy Graham dies. This is in no way a death threat or anything close. I just think that is going to be one awesome party. Can you imagine how many lives he and his group have changed? the song that keeps coming to mind is

Thank you for giving to the Lord

I am a life that was changed

Thank you for giving to the Lord

I am so glad you gave

June 10, 2017

Can I do this, Lord?

It has been a crazy week

Good and yet different at the same time

Got some good work stuff done

Not all I would have liked

Hopefully I’ll get to more next week

Thank You for giving me some time with a friend

She’s leaving for the summer

Thank You for my aides

Lunch girl is a dear friend

Dinner girl I’m not sure about

Think I have plans with a friend tomorrow

Grateful for that

And I should be registering for camp soon

Pretty sure camp is going to be I know  summer getaway

 

First guest blog post

June 1, 2017

We’ve had one of my brothers who lives out of town around for the last couple of weeks. It’s been fun to have him and his little family around. We’ve had a lot of fun, going out, watching movies, playing games.. I’ve kind of done my work around their schedule. Anyway, this weekend will kind of be our one last hoorah before we have to tell them good-bye. A lot of our family will be gathering.

That’s one reason I’m writing tonight.. The other reason is that I’ve had a guest blog post published today. My hope is that this is going to be the first of many. I’m trying to get the word out to everyone about this.. You can find my blog post at https://radicalchristianwoman.com/christian-family-vacation/

Weekend poem

May 13, 2017

Saturdays are my days to make sure everything is finished up for the week

Make sure blog is done, e-mail is finished,

Saturday is the day I make myself does personal e-mail

And Saturday nights, sometimes we play games, or watch movies

Sometimes we go out

Sunday is my day of rest

I love going to church and being part of the worship service

I love getting to spend time with friends.

The best Sundays are the ones  when we do things with friends

I often go home with friends after church

Sometimes we take trips on Sundays

Sundays are also great days to relax in front of good movies