My Christmas letter

December 23, 2017

Dear friends,

Let’s see, one big thing was going to Cyprus, with a surprise side trip to Israel this past February. This was my first time to leave our own country, and I was not disappointed. We went to be part of a conference for a missionary group that I’ve always loved. The an conference took place the first week we were over there, and we gotten to make a quick trip to Israel the second week. We’re actually about to go back for the conference in January this year.

Another highlight was getting to go to camp again this. That was in July. For me, camp is about helping families of people with disabilities see their loved one’s value. It’s also a great time to relax and enjoy some fun and laughter. I’m hoping this becomes an annual event for me.

With all my grandparents gone, I’m grateful to say that we’re still keeping in touch with our larger families. We spent my birthday weekend with Mom’s family. We’ve also gotten to see Dad’s brother this fall. We’ve gathered with different ones of my siblings throughout the year, and I always enjoy those times. We’ve also added two more nephews to the family this year. We are going to gather with most my siblings in January, and I’m looking forward to that.

I’m in kind of a complicated place with work. I need to make some decisions about work and where to go with all of that. One of the things I’m pretty sure I am going to be looking into more is writing articles and being paid for them. I will get more serious about working after January and all our celebrations.

I’m also looking for a newer friend group to be part of at church. I’ve had one of the friends I used to spend a lot of time with move away to help take care of her in laws. She does come back to town, and we get together whenever she’s around.

The other big thing in my life is my communication device broke about the time I was getting ready to go to to camp. Thankfully, I did get a loaner by the time camp started. But my device was older than we thought, and after a lot of discussion and back and forth, we’ve decided to get a new device.


I want to end by wishing everyone a Merry Christmas and a Happy New Year.





December 16, 2017

I’m amazed. It’s a little after one, and I’ve finished everything I want important with work. now to take care of personal e-mail and Facebook. I also need to get some practice in on the new communication device I’m trying.

The new communication device.. Let me try to explain where I am on that. My communication device broke in July, and thankfully I’ve been able to get a loaner device. But as far as technology goes, my device is old, and the repair I need is expensive. I need to get a new device, it’s kind of the next thing. I have a lot to learn on this new device. First of all, this is a new kind of screen, and I’m trying to learn that. The new communication device also has a computer inside of it. The computer has been upgraded to Windows ten.. There is a whole lot to learn and figure out. It’s slow going for sure.

Things have changed in my life. The friend I did things with most Sundays has moved.. I never work on Sunday, but sometimes I’ll get lazy on Saturdays and save personal e-mail and Facebook for Sunday.. I like getting out of the house as much as I can on Sundays, to do things with friends. But sometimes that just does not work out.

Christmas memories

December 9, 2017

Christmas has always been one of my favorite times of year. I love the decorations. I love the plays. I love the Hallmark Christmas movies. I love the parties.

When I was growing up, the parties and plays seemed to be kind of a prelude.. We used to go to my grandparents each Christmas. We lived farther away than my aunts and their families, so my family would get to my grandparents a few days earlier. Both sets of grandparents lived in the same small town. I loved being with my Mom’s parents. For me, it was a great time to read, enjoy watching movies and relaxing.

Dad’s parents used to have these big dinners. It was my parents and siblings, Dad’s brother and his family, and then whoever else. Granny loved to make these huge dinners. She made t wonderful country cooking meals

I think I am going to stop here and get back to this next week.


November 18, 2017

First I’m sorry for the long silence. My weeks seem full of work.. And my Saturdays have been filled with different things. We’ve been out of town some. We’ve done some different things with friends.. And I’m not sure what the coming weeks are going to be like with the holidays coming on. Let me do my grateful list while I do have sometime.

  • I’m grateful for this communication device which is also my computer. We’ve had some problems with these devices lately, and we’re working toward getting a new device. This communication device is the way I do everything from reading to all the I do. Even on days like today when I want to take a breather from everything for a while, I’m still glad to have something that works.
  • I’m very grateful for my family. They really take care of me. And I’m so glad to have had so many siblings. Visiting with them and their littles is one of my favorite things to do.
  • I’m grateful for my church family. I’ve been a part of a couple of bible studies the last few months, and I’m enjoyed both a lot. And still I love gathering on Sundays and having a day of rest.
  • And I’m grateful to be reconnecting with an old friend. We used to be really close, but have kind of gone our separate ways.. But we’re talking more again and I’m grateful.

Where I’ve been

October 14, 2017

The past two weekends we’ve been visiting with family. I’ve gotten to meet my newest nephew. He’s exactly one month old today, and he and his big brother are both real cuties.

I posted on Facebook over a week ago that I had a big decision to make about the communication device. Thankfully I do have some time, and some help, to figure this out. The thing is, I’m using a loaner communication device. Mine is in the shop. Do we ask my insurance to repair mine if we are going to need to ask for a new device in next year or so? That seems like a waste for everyone.

I’ve kind of tried the new device for a week or so.. I say kind of because I was only able to use the eye gaze system. My pointer, the thing I’ve communicated with since I was a tiny girl, doesn’t want to work on the new communication device. So I didn’t get any real time to figure out the new system.

The thing is, obviously we don’t know how much longer my communication device is going to work. I’m just not sure what to do about all this. I’m talking with my speech-language pathologist and the people at the company to try to figure something out

Trying a new device

September 16, 2017

It’s kind of been an exciting week. My newest nephew came on Thursday evening. Labor was quick and that was definitely an answer to prayer.

And then yesterday I was introduced to what could be my newest communication device.. Well, I guess it’s more a question of when not if.. [Unless the Lord heals me, which I’m totally opened to.]

I’ve always gone with Prentke Romich devices, and they’ve never let me down. Not only do the devices seem like the best products out there, their support people are awesome. And I mean everyone from sales to service.

When my device broke this past summer, the speech-language pathologist I’ve been with for several years suggested that we go on and start looking at another device.

I’ve known there was a way to use the communication device with only your eyes.. I wear a hat that has a stick on top of it. I can not remember a time when that was not how I’ve communicated. But we’re giving this Eye Gaze thing a try.. It’s an adjustment for sure. Trying to learn that and a new device is going to be a good bit of work. I’ve only had the device two days so far. I am going to be practicing some each day.. We will see

September 9, 2017

My weekends have been a little crazy lately. And honestly, I’m on the computer later than I’d like to be on a Saturday. But I am getting a lot done, and I know that I am going to be away from everything tomorrow, which sounds great because I’m ready for time with friends.

I’ve been around family for several weekends in a row, different combinations of family. I’ve enjoyed that quite thoroughly.

I’m not sure what to say. Have been in prayer for this nation a lot. I know we’re in a mess with these hcanes. I’m praying about that too. But hurricanes happen, natural disasters are part of life.. I’m more concerned about these riots. Should we keep our monuments? Do we respect life? Do we respect authority? Leaders mess up, they’re human. We are all human.. Sighs, I have a lot more questions than answers about all this stuff. And I do not understand everything going on, I know that.

I may have bitten off more than I can think through tonight. But I am thinking and praying through these things.

Trying to do this

August 12, 2017

As usual, by this time of the week I’m ready to put down any kind of work and just relax for a while.. I know I am going to be pretty busy the next two weekends, and I don’t know if I am going to get around to this or not. We’ll see how things go. Today I think I’ll share some about my personality, I guess.

  • I like order. I like getting things done and knowing that they’re done for the day. And I feel better if all my work is done before I start reading or doing fun stuff.
  • I like enjoying my dessert last. Kind of feel disappointed if I don’t have dessert waiting for me after dinner.
  • I’m disabled and can’t feed myself, so I never eat alone. But I don’t like eating in quiet. I like listening to other people. Don’t like it when aides come in and they have nothing to say.
  • I like quiet when I’m working. Sometimes I turn music on. Other times I don’t.
  • I’m reminding myself that these last few Sundays are not normal. The friends I usually do things with are gone.. Also reminding myself that something besides the church meeting has turned up for me to do. Hopefully something will happen tomorrow.

I got stitches [long time ago]

August 5, 2017

I’ve been working pretty much this week, and as usual, I’m not sure what to do on this. But I looked up blog prompts, and decided that might be interesting enough to tell.

We lived in the mountains of North Carolina from the time I was four until I was about nine. I think this incident happened when we were back there visiting shortly after we had moved. My sister and I were visiting with one of her good friends.? I don’t remember why, and I don’t know if my sister had just started pulling me up the steps in the wheelchair. But somehow I fell and busted my chin. I remember going to the doctor’s office, not the hospital, to get my stitches.. Think my sister had to take me to get ndy’s for making me get hurt.. Don’t think she was really at fault of course..


Camp memories

July 29, 2017

I’m about ready to give up on everything having to do with the computer for today..? I’ve had some computer troubles and things like that. But here is story about camp. This is mostly taken from my journal. Camp begins Monday after lunch.. I stay in the conference center which is more like a hotel than a camp, which is fine by me. The first thing I did was meet my helper. Her name was Judy. Really sweet woman.. Judy was the person who would take me wherever I wanted to to go. We were together from breakfast until I decided to get to bed. I had met her when I went last year, but we hadn’t spent a lot of time together so we took some time to talk and get to know each other. She’s a teacher, is married to a physical therapist. They have two girls. We went swimming. Katie helped us. Katie was someone that helped me with lifting, bathing, feeding.. I think we sat around and talked some more after changing. I told her and Marsha, who’s the friend that got me to camp in the first place, about my trip overseas. We had dinner together. And then it was time for our first meeting.. The theme this year was Africa.. We had ice cream after that and went to bed.. Tuesday we got up and dressed. I had some quiet time. then we went to breakfast. After breakfast, we had a large group meeting and then met in small groups. I was disappointed not to get anymore time with my small group that week.. We had lunch. And then I rested some in the nursery. We went out on a boat Tuesday afternoon. Katie took Judy and I and a couple of other girl in the car. After the boat ride, we ended up back in the nursery with Lori, Marsha’s neighbor. I think they’re pretty close and have done a lot of life together. Dinner was Mexican food. Marsha put like a salad over rice. I don’t remember sitting with anyone except the three usuals, Katie, Marsha and Judy.. I think we needed to get food down pretty quickly. Marsha was not comfortable with either of the desserts so we just skipped. It was camp shirt day and we had to take pictures. Started telling Judy about David. The camp dance was next. This was not a boy/girl thing by any means. Marsha was working with Angalee, funny how much she reminds me of Aunt Debbie.. And Mom, Judy’s daughter is Angie. Except for having shorter and less hair, she looked and felt a lot like Brooke. It was amazing how similar they feel. Angie had Katie Erwin this year.She’s autistic. Katie loves to tell jokes.. I danced some, going around in circles. But Judy and I talked a lot about the family and everything. Told her a lot of stories. Marsha gave me some smoothie.A lot of people were going swimming but I thought it would be too busy and crowded. Marsha and Katie gave me a bath and I  got on to bed.. Wednesday was the day I got quiet time done. And that was nice because I had no time the rest of the day. Had biscuit and gravy and frosted flakes. Sat with Gwendy. She’s  one of the people I feel could do more, could work from home surely. But she just watches tv and plays bingo. It’s kind of sad to me.  Wednesday was the  day the Africa people shared. It was slides and stories, no teaching to my disappointment. There was no group time either. The day started the mayhem after that. Marsha felt like she needed to stay with Angalee. And besides, Nathan was sick and they wanted him to keep to himself. So Marsha didn’t go on the trip. I ended up sitting in the car about an hour while they got us all ready. Judy was with me most the time, telling me about her two girls.. Katie drove and we had Cecelia with her helper.We had sack lunches. Marsha had asked for some different things to be put in mine. Not sure if we were given the wrong lunch or whatever.  Katie and the girls were with a different  boat. Katie felt like Cecile and I understand that. Judy and I rode with several downs guys and their helper. It took us a good while to get et me figured out. Wearing a pdf and a helmet can get complicated. By the time we had figured everything out it was time to swim. And Judy and I didn’t want to ask. We did get into some interesting discussions.. The guy that did my massage last year got me back to Katie and the girls. Got back to camp. Got changed. If I could have taken a bath by myself I would have.. Dinner was chicken, rice, vegetables and potatoe. Dessert was raspberry cheesecake. Judy and I sat around talking some more. And then I talked to the African pasor some. And then Chatequa and I talked a while.Katie, Marsha and I talked some about disability and the lack of motivation. Got to bed pretty late. Got up and had a little quiet time. Breakfast was french toast and yogurt granola with banana. We had a little worship time together. And then had a ladies tea. Didn’t eat anything there. Really enjoyed the devotion that was  read. And then we had a time of sharing. So many of the women have been blessed through camp and each other. And then it was time for the ladies lunch. Had pita with humus, and then n tomato soup.. I don’t understand why they do this, but the woman that shares seems to have this awful story. This woman’s husband was killed right around Christmas. And then her  son was kidnapped right around Valentine’s Day.I didn’t like it. Didn’t think it was encouraging at all. Had some more chicken which Katie put into the soup and then some cake.. I had my massage. Honestly that at was pretty disappointing? Feel like they were barely touching me. Katie, Judy and I did go swimming and that was nice. Then Judy and I tried to do the art. Thought that would be sometime I could write but dinner was earlier than we thought and we had to go back down without doing anything.. Dinner was salad, spaghetti, green beans and chocolate cake. Didn’t have this. It had  had to charge. Sat with a friend of Katie’s. And then it was time for the show. The Emmarts did make it. Found somewhere to charge and Kesha and I chatted through the show. The Emmarts were the family I became fast friends with last camp.  Bella, who’s four. kept hugging me. It was sweet. They made themselves leave after the show. It was hard because they wanted to visit with everyone but the girls were worn out, and of course he had a to work in the morning.. Went to the fires. Gracie Erwin had done a beautiful job singing and I got to tell her that. Judy and I talked to another helper for a while . Marsha a got me a bath herself that night.. Had some quiet the next morning.Had banana, biscuit and gravy and yogurt  granola bar. Sat with Gwendy and her family some. Think the sister and I are going to keep  up. Got a little time with Donna some. Hung out with different people… Closing meeting was a lot of pictures and stories about camp.